2 YEARS

2015 May 04

Created by Faith 9 years ago
It has been two years, one month and 2 days.  We had your 2 year angelversary at Mccarty Park again, this time we let go of balloons with a brief version of your story attached to the strings.  One of the balloons went all the way from Milwaukee, WI to Saginaw, MI!   Soo amazing!  All the way across the lake and almost all the way across Michigan!  (craziest thing I am typing this and Dr. Oz is on in the background and all of a sudden I hear "so many children die of cardiac arrest each year" ... kinda crazy to hear that right as im typing this.

With that being said I recently started talking with SADS and SUDS and contacted the Mayo clinic and I am hoping that they will get Bailee into a study to do genetic testing and possibly find a gene mutation in Bailees heart where we could have some sort of answers.  I will update more info as I have it.

Besides all that, I honestly don't feel any different than I did 2 years, one month and 2 days ago.  I still am in very deep shock and have still not processed losing Bailee.  It makes it very hard for me because I have not come out of the fog like they "say" you will.  I am still in the fog and I don't remember so much of what happens on a daily basis, its so frustrating and scary. 

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